EB Research Partnership

EB Research Partnership is the largest nonprofit funding research aimed at treating and ultimately curing Epidermolysis Bullosa, a group of devastating and life-threatening skin disorders that affect children from birth. EBRP works to treat and cure EB as quickly and efficiently as possible, fulfilling our mission through partnerships with non-profit and for-profit organizations, foundations, individual donors, and the EB and research communities. Leading researchers say treatments and a cure for EB are within reach. Though we have made significant progress, we need much greater resources in our pursuit of a cure.

Charity Navigator Ratings

Overall Rating

(4/4)|96.17 Score


(4/4)|96.35 Score

Accountability & Transparency

(4/4)|96 Score



Headquarter Address

132 East 43rd Street
Suite 432
New York, NY 10017