Creutzfeldt-Jakob Disease Foundation

The mission of the Creutzfeldt-Jakob Disease Foundation is to support families affected by Prion Disease, raise awareness, and support medical education and research. We provide family support including a 7-day HelpLine, referrals, support groups, and teleconference speaker series; education and information for families, caregivers, medical professionals, and funeral professionals; advocacy with political representatives and public policy makers; and a research grant program, with international awardees selected by our Scientific Advisory Committee.

https://cjdfoundation.org/